To see the full blog post go to: http://www.ourfamadventure.blogspot.com//
Here are some resources for those of you who are stopping by to find information about Sickle Cell in Children:
Here's a page just for Children
And for Parents
About the Genes
Before I get to the update I just have to say I think I see Asher's face shine with the Lord's glory at times!
I've been wanting to update since yesterday. Our visit to DuPont(Neumours) was a stressful one. They attempted to draw blood for about 45 minutes but this kid has so much scarring on the only good vein he has. They wound up pricking his fingers and squeezing the blood out to do the hemoglobin test and a couple others. His hem is up some from 7 to 9. Normal is between 11 - 14...Asher's normal will be about where it is...ok, now about what type of Sickle Cell he has...
Asher has inherited sickle cell from both parents, therefore has the most severe form of the disease, SS. We were hopeful to hear something different but our baby is going to need a lot of medical care. But in Christ we are still hopeful. God has kept this baby boy alive in Haiti. Looking back at the last 2 1/2 years, his frequent serious illnesses, hospitalizations, blood transfusion, etc. I'm amazed. He probably should have died...but the Lord has a plan for his life. I've been trying to process all this in the past 2 weeks, especially the last 24 hours or so.
His test also show 17% of fetal hemoglobin, something we stop producing once we are born. This is good because it is likely that his body will continue to produce this. Fetal hemoglobin, as I understand it, doesn't sickle. I'm convinced the Lord did this to save him from dieing in Haiti. I know that He also could have healed him totally but there is just so much that I still don't understand. And probably never will this side of heaven.
Asher has a purpose, created by God. He'll have many obstacles, but if you could only see this kid and the way he handles his discomfort. What a joyful child he is. It's totally God and God in him. It brings ME joy and also sadness at the same time. We will learn from Asher. I already have.
Sunday we introduced him to the congregation at church. As we worshipped in the sanctuary, he raise up his little hand to Jesus. It comes natural to him, worshipping unto the Lord. He's close to God. I bet he's even met Him :-) I mean that. I can see it in the way his face shines, and the peaceful spirit he possesses. Only one who is inhabited by the Holy Spirit has that kind of peace. Only one who has seen the face of God can reflect that kind of Glory.I mean, look at how good this kids looks! He Shines!
We are blessed to call him OUR SON. I don't think I understand how blessed we are yet.
OK on to other things...did I mention that Asher's hematologist is an adoptive mother. She's adopted from China, how cool is that. So she not only understands his medical issues but also understands the added challenges he has.
Our "brothers" are doing pretty good. I think Evan has moments of mourning at times but is learning it's not so bad having a little brother around. We just need to remember spend "special" time with him and show him some extra attention for a little while. It's easy for us to spend all our time with Asher with his medical needs and forget that Evan also needs some support.
They do this really strange thing with their mouths/tongues at each other, holding the corners of their mouth while slightly bumping heads. I got the tail end of it in this picture. It's weird but they love it and makes them laugh at each other...hey, whatever it takes, we're bonding!
I love this time of year. The air gets crisp and the colors are all my favorites! We took the boys to a fall festival about a week ago.
Tub time is a favorite here! It's hard to get him out :-)
And we had a little family soccer with big brother Brad
We also went to the zoo. He loves to go "out" and he also is really good about going to bed...this kid is amazing. Oh and he now reaches for me when someone trys to pick him up that he doest know...very very good :-) And when he says mommy, I can tell it's starting to mean something.
To learn more about Sickle Cell Anemia you can click Here